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sicklecellanemianews
6 小时
Reminiscing about the old me as I look to the future
As columnist Mary Shaniqua looks to the future, she remembers when she was far more active — and wonders if that could be a ...
sicklecellanemianews
1 天
SCD gene-editing therapy Casgevy now being offered at CHLA
With the addition of Casgevy, Children’s Hospital Los Angeles now offers two gene therapies for sickle cell, the first being Lyfgenia.
sicklecellanemianews
3 天
First patient enrolled in Phase 1 trial testing fostamatinib for SCD
The first patient has been enrolled in a Phase 1 trial by the NHLBI that's evaluating fostamatinib as a treatment for sickle ...
sicklecellanemianews
7 天
Richard Bayliss,
Richard Bayliss is 44 years old and has sickle cell disease with hemoglobin SS disease. He’s in the final year of a master’s ...
sicklecellanemianews
7 天
How to be an ally to those of us with sickle cell disease
Columnist Mary Shaniqua explains how to be an ally to the sickle cell community, and why that kind of support is essential ...
sicklecellanemianews
7 天
Guest Voice: Moving, literally, in the right direction for sickle cell care
After moving from Sierra Leone to London, guest columnist Richard Bayliss received a proper diagnosis and care plan for his ...
sicklecellanemianews
8 天
Brains of young adults with sickle cell look older than their actual age
The researchers found that people who were economically deprived, even in the absence of sickle cell disease, had more ...
sicklecellanemianews
8 天
Beyond my breaking point: My hypothyroidism diagnosis
Columnist Oluwatosin Adesoye had faced many sickle cell complications, but her hypothyroidism diagnosis was, at first, overwhelming.
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